Grace Katherine Webster
2003 - 2011
{ "" }
Share Grace's life story with friends and family
Send an Email
Or Copy this URL to Share

Grace Katherine Webster
December 24, 2003 -
December 11, 2011

Grace Katherine Webster, seven years old, of Anderson, California, died Sunday, December 11, 2011.

Gracie was born on Christmas Eve, December 24, 2003 in San Jose, California to Perry and Erica Webster.

Gracie was loved by her parents, Perry and Erica Webster, her sister Sarah, 6, and her brother Garrett, 3. She was also loved by her great grandmother, Sue Jordan of Auburn, California, grandmother and grandfather Susan and Mike Jackson of Destin, Florida, grandfather John Gibb of Oakland, California, and grandfather and grandmother Mike and Sharen Webster of Redding, California. Gracie leaves several aunts and uncles: Mike Jackson of Tampa, Florida, Tony and Dawn Jackson of Thornton, Colorado, Renee Webster of Fair Oaks, California, Michelle and Mike Robinson of Anderson, California and Lewis and Lori Webster of San Jose, California. Gracie also was loved by her five cousins, Emily and Andrew Robinson of Anderson, Zane and Cole Webster of San Jose, Lily Jackson of Thornton, Colorado and her beloved nanny, Mandy Gray Gelms of Redding. Gracie was also blessed to have had the love, support and prayers of many other dear relatives and friends. Gracie attended Verde Vale Elementary School in Anderson.

After nearly 8 years of a courageous battle with a seizure-causing brain tumor, Gracie passed away unexpectedly but peacefully with her mother and father at her side, on Sunday morning. Gracie brought joy to the lives of those who loved her with her gentle smile and loving personality. Gracie loved going to school, making jewelry, doing puzzles and taking care of her baby dolls. She was a great big sister and simply wanted to make sure her sister and brother were happy every day. We were blessed to have her in our lives and she showed all who knew her that even in the tough times all of us can find moments of immense happiness and joy.

Services will be held at Allen and Dahl Funeral Chapel, 9100 Deschutes Road, Palo Cedro, at 11:00 a.m. Monday, December 19, 2011 with burial following at Anderson Cemetery. Memorial contributions in Grace's name may be made to Hope for Hypothalamic Hamartomas ( or donation for the family through Alyssa Araiza Wings of Angels (

Please sign the guestbook at

To Plant Memorial Trees in memory, please visit our Sympathy Store.
Published in Redding Record Searchlight on Dec. 15, 2011.
Memories & Condolences
Guest Book sponsored by Mama and Papa
Not sure what to say?
View Printed Guest Book
92 entries
March 30, 2016
Bless you dear,dear sweet Gracie. What a lovely spirit you have and what a lovely family you embraced with all your heart.
March 2, 2016
What a beautiful child and precious soul. What a brave family. I worked in her summer school class in 2011. She was a little light who touched everyone in some way. We were so sad to hear of her passing.
Tasha Amero
January 4, 2015
Thank you Lord for sharing your angel Gracie with us. We have experienced a kind gentle spirit and unconditional love through Gracie. Thank you that Gracie was a perfect example of Christ's love for each of us. In less than eight years Grace touched more lives than most of us will ever hope to touch. Thank you that you chose Erica and Perry for her parents as continue to share their story of life with Grace as they encourage others with HH that there is always hope. I love you Gracie ... may you RIP, Auntie Cathy
Auntie Cathy Jordan
November 13, 2014
November 7, 2013
Thank you grace. For coming into this world to teach those who loved you. Your memory will help all of those suffering the way you did. And your joy in life will remind us all to never take any moment for granted.
Chelsea Miele
August 31, 2013
Such a sad story but really shows what a fighter beautiful grace was. I also have a hypothalamic hamartoma and know its not easy to grow up with one. A remarkable little girl, her legacy will live on forever xx. Carrie
June 18, 2013
Reading Grace's story has touched my life and made me realize how much I take my children's life for granted. Her story has blessed me tremendously and I want to go home and hug my four children and tell them how much I love them, the next time they do something that usually gets under my skin I am going to take a deep breath and think of Grace and be thankful for every second I have with them. May God bless you and your family and you all will be in my heart and prayers forever. Have a good day :)
Amanda Harris
November 28, 2012
A year has nearly gone by and I found myself thinking about your sweet Grace a lot. My heart is closed to your in this difficult period and always.
Matteo's mum
November 26, 2012
I thought I had written in here before but am figuring that after reading her journey I may have stepped back and just mourned this beautiful loss we all feel. My name is Kerri and my daughter Kallyn looks like she could be Graces sister. We have been going thru the challenges of HH with her for 1 1/2 years now and had the Transcolossal surgery December 1, 2011 in Phoenix. Kallyns only difficulty after has been excessive weight gain and humger and short term memory loss. We have recently noticed a starting of anger and serious emotional outbreaks of crying that have us wondering if we are headed into a bad direction. They too said her tumor was fully resected. It only takes one cell left to start growing again. This is something you are readily aware of. I am scared after reading your journey and challenges and seeing how much our beautiful babies are so alike. I would love to know where you are and speak to you. We are all with you in prayers everyday with regards to your loss. Kallyn and I are traveling back to Phoenix on the 10th of December for some more tests to see how her recovery is going from the inside. I hope your recovery is going well. I can't imagine your loss. Actually, I am wrong, I can imagine it. I am certain every HH family can, but I hope our pryaers help you to endure.
Kerri Haffner
November 21, 2012
Grace, a young girl with strenghth and courage beyond your years. You are looking down on your loved ones for almost a year now and we feel the power of your presence in pretty flowers and bugs that you love so much. Thank you for allowing us to appreciate the small stuff. I am happy that you now know peace beyond understanding. Thank you for your shining spirit that still inspires us. Lord I continue to lift up my lovely niece Erica, her devoted husband Perry, Sarah, and Garrett.
Love, Aunt Cathy
Cathy Jordan
November 19, 2012
Grace I did not know you. I wish that I had. You beautiful little smile and sweet face. I wish that HH had been discovered long ago, so that we could have a cure. My grandson Landon has HH and we pray for him and all the others who face this challenge and for their families who love them.

You are a beautiful young lady and your life was cut way to short.

We will look for a cure and we won't stop looking.
Kathi Kirby
May 29, 2012
Grace Katherine Webster, a remarkable little girl. She will be forever cherished around the world by those who learn of her journey. Grace had the courage of a warrior, an agape love for her family and caregivers, and a amazing spirit of peace despite her struggle to overcome HH. Thank you Grace for showing me the love and light of Christ through that beautiful sparkle in your eyes every time you smiled.
Psalm 31:24 Be of good courage, And He shall strenghthen your heart, All you who hope in the Lord.
Lord I lift to you...Erica, Perry, Sarah and Garrett. All my love, Aunt Cathy
Cathy Jordan
April 30, 2012
We are the family of Jadyn Schlauch. Her story is also part of the the website hopeforhh. Jadyn has been seizure free 1.5 yrs since the surgery. Today we were told we can reduce her dose of seizure meds each week. Then, Grace's story came up on my Facebook. We are so sorry for ur loss and pray for your family to continue to be strong. We, like all family's want a normal life for our child.
Nathan Schlauch
January 12, 2012
Naming your daughter Grace was no accident, she was beautiful in name and nature. She has been a pillar of light and courage throughout her journey despite her challenges. Grace will always live in our hearts and be an inspiration to all who knew her personally or through your photographs, HH journals and/or Facebook. Her birth and death was no accident, Grace is an intricate part of God's perfect plan. Your family was chosen to do God's work. May you find comfort and peace through the love of Jesus and those who will always love and lift you up in prayer. "I Can Only Imagine"…our Gracie, "Dancing With the Angels". Always in our hearts and prayers…
Aunt Cathy, Uncle Bob, and Victoria Jordan
January 12, 2012
Dear Erica and Perry,
Grace is in our hearts and will be with us always. Know that you have our love and continued prayers.
Love you, Aunt Kathy & Uncle Dale
Kathy & Dale Henley
January 11, 2012
Grammy Sue misses you so very much. I will always reember your sweet smile and your loving ways! Dance with the Angels, dear one!
Susan Jackson
January 11, 2012
May the memory of Grace live within you forever. Many things in life we don't understand and this is one of them. Grace was one lucky little girl to have been born to such an awesome heart goes out to all of you. I will remember Grace forever.
Judy B
January 11, 2012
I will always remember Grace even though we never met each other. She was an amazing girl who touched the hearts of many people.
Megan Kramer
January 11, 2012
Perry, Erica, Sarah and Garrett,
Grace was so very lucky to have your love and support, playmates and fun times during her short time with you. I can tell she was a creative little girl making jewelry and wearing it so proudly. She was as lucky to have all of you as you are to have had her in your lives. Cherish the memories, I'm she would want you all to smile for her. often.
Kelley Robertson
January 11, 2012
I haven't been able to stop thinking about you and your family since I heard the news. My heart and thoughts and prayers are with you all. ? And I wanted to tell you how much Grace shone like a light through your memory keeping. How photos of her, the stories of her...her journey, her strength, her struggles and triumphs. Painted a beautiful picture to those of us who never had the opportunity to meet her. A picture of beauty and light and life and of LOVE. What a beautiful legacy.

Love to you,
Sara Gleason
January 11, 2012
Our thoughts and prayers are always with you. Grace was on earth a short time, thats why God gave her the best parents and family.
Love you, John and Kim
John and Kim Gregory
January 11, 2012
Dear Erica, I am Mariella, Matteo's mum (HH italian boy); I have just read about your sweet Grace and I have got no words to say how lost I felt and how sorry I am for your loss.
My heart and my prayers are with you and your family.
Keep strong
mariella colli
January 11, 2012
mariella colli
January 8, 2012
Erica and family, I am so sorry for your loss and pray that time will bring you strength and healing.
Leora Sanford
January 1, 2012
Erica I am soo sorry for your lost i wish i could have sent something to her before she passed. These gifts they made me will always hang on my wall during the holidays and all year around. she will be in my heart and memory.
Amber mueller
December 28, 2011
So much love in her short life. I'm so very sorry for your loss. Words can't express the feelings. I'll think about and pray for your family in these difficult days to find special memories amidst the sadness and strength to grieve and love. Your sweet angel...
Krista (norton94) Pearl
December 23, 2011
So very sorry for your families loss. What a tragedy. But at least she was blessed with a wonderful family. Take care,
Jen Papadimitriou
December 23, 2011
I'm lost for words and the tears flowing over my face. I'm so sorry immemorial and I wish you all much power for the next time! I will pray for you and your family!
Madlen (domad)
December 21, 2011
Oh, Erica, I am so sorry for your loss. I am lisataz on Tiffany's template team with you. I can't imagine what you are going through right now, so just know that I am sending you strength in whatever way I can. May your family make it through this holiday season in whatever way you can.
Lisa Tauzell
December 20, 2011
Dear sweet Erica an family, you are all in my heart, thoughts and prayers. I am so sorry to learn of the loss of your daughter, sibling, and love. She was surrounded in so much love and a family of amazing faith that I only witnessed from time to time in snippets on a scrapbook page. Her spirit is now a guiding light shining bright from heaven above. May she always be with you in spirit.

With love and prayers,
Tiffany Tillman
December 20, 2011
I am so very sorry for your loss, I was on my Face book account and this came up as I have a 16 year old son with Epilepsy so I belong to the site. I cann't even imagine your pain what you must be going through, I know each and every day we worry about our son but this is not about him.....

I feel in time you will mend but not forget, again I am so sorry, I must tell you I filled up when I read about your daughter so sad but rest assured she is looking down on your whole family, she sounded like a lovely young lady..

God Bless you all and stand with you.
alice fital
December 19, 2011
Perry, Erica, Sarah, and Garrett, our thoughts and prayers are with you today and every day. We can't even imagine what you are going through and know there are no words to make it easier. Just know that Gracie has always been in our thoughts and she always will be. She is an amazing girl and you have been amazing parents and siblings! Much love to you all.
Vicki Moore
December 19, 2011
I will always hold a special place in my heart for Grace, she was a blessing to all who knew her. The love and strength of your family is truly amazing. I am so blessed to have worked with Grace and gotten to know her family. She will be missed by all.
Shawna Van Wagner
December 19, 2011
Our thoughts and prayers are with you and your entire family. Grace is safe in the arms of Jesus. She lives on through your work and through the lives of those who were blessed to know her.
Mary Fratianni
December 19, 2011
I am so sorry for your loss. My husband and I lost our 17 year old son to a red light runner five months ago and know the pain. Our thoughts and prayers are with you
Jessica Knorr
December 19, 2011
Erica & Perry, I was among many who were blessed with the opportunity to work with Grace. What a delight it was to spend time with her. She always had a smile, and was so happy to show off her jewelry and stickers.:) You and your family are in my prayers and will continue to be. Miss Becca
Rebecca Garman
December 19, 2011
Dear Webster Family,

We are deeply saddened by this irreparable loss. Our thoughts and prayers are with you. May He provide you the strength and courage during this difficult time!
Ram Bhattacharya
December 19, 2011
Wearing beautiful beads today.... In memory of Your/Our Grace. I am so sorry for your great loss. My thoughts a prayers will always be with you and your Family. She was for sure a precious Angel.
Julia Moore
December 19, 2011
Webster Family,
I am thinking and praying for all of you constantly! Erica you have given everyone so much strength .. Let Grace give you the strength you need now to continue on. Wish I could give you a big hug...I feel like a piece of my heart is missing....can not even imagine the hurt you all have. I will keep praying praying praying!!
Jennifer Keener
December 19, 2011
You are all in my thoughts today and always. You have had such a tough journey and though Grace is no longer with you she will continue to play a very important part in so many lives. I will always remember her and I know that so many have learned and will continue to learn from her life. I'm so glad she is suffering no more. I just know she is having a blast playing with the Angels! Love to you all. Dyan Hunter
Dyan Hunter
December 19, 2011
To The Webster Family,

Our hearts and prayers are with you every day.
Becky Piliponis
December 18, 2011
Gracie was one of the sweetest little girls I ever knew...She is the kind of person who lives forever in your heart and often remembered as "all girl." We will never forget you Grace,
Theresa & Kristi Pineda
Theresea Pineda
December 18, 2011
Dear Webster Family,
We are so saddened by this tremendous loss. We want you to know that we are thinking about you, always. Your precious angel is looking down on you from heaven.
Tony, Heather , and Alicia Andrus
Heather Andrus
December 17, 2011
To the Websters.
Although we never had the chance to meet, we followed Graces journey on Hope for HH. She was a courageous beautiful girl with a gorgeous smile who will never be forgotten. Our thoughts are with you all.
Jansen Family
December 17, 2011
Dear Webster Family: You are in my thoughts and prayers. Gracie was a wonderful girl and I am thankful I was able to meet her. Matt Troester.
Matt Troester
December 17, 2011
My heart goes out to you... I am so sorry for this great loss.

Know that Grace is watching from heaven above,
And with each ray of sunshine, she's sending her love.
Krista Sahlin
December 17, 2011
Grace was such a unique, sweet, strong and beautiful girl. I will never forget her smile or her strong will. I will also never forget Baby Blue and her accessories. :) I feel blessed to have known her for a short while. I pray that God will give you peace over time and I am picturing Grace free as a butterfly with no pain, anxiety, or restrictions.
Stacey Neill
December 17, 2011
Dearest Lisa, Perry and Family,
We are deeply saddened by the news of Grace's passing. May the love that surrounds you bring you comfort and may the gift of everlasting life bring you peace. With all our love and prayers, The Carlini Family

Psalm 31:1-3,24
> In You, O LORD, I put my trust; Let me never be ashamed; Deliver me in Your righteousness. Bow down Your ear to me, Deliver me speedily; Be my rock of refuge, A fortress of defense to save me. For You are my rock and my fortress; Therefore, for Your name's sake, Lead me and guide me.
> Be of good courage, And He shall strengthen your heart, All you who hope in the LORD.
Anita Carlini
December 17, 2011
Dear Mr and Mrs Webster, I am so sorry for your loss. My thoughts and prayers go out to you and your family.
Sincerely, Lisa Donahue
Lisa Donahue
December 17, 2011
Mr. & Mrs. Webster,
We are so sorry for your loss. Our thoughts and prayers go out to you and your family.
Steven & Monica Sanchez
December 16, 2011
My heart goes out to you. I don't know your family, but I feel so terrible for your loss of such a beautiful little girl. It is a shame what most of us take for granted. Her smile will forever be embedded in my heart. Sincerely, Angela (just someone who cares).
December 16, 2011
Dear Erica and Perry: I am so sorry for the loss of your daughter. My heart goes out to you and your family. Sincerely Gina
Gina Mattern
December 16, 2011
you are all in our thoughts and prayers
December 16, 2011
Heaven is a little brighter from the smile of your sweet child. I am so sorry for your loss, your family is in my prayers.
Kim West
December 16, 2011
Dear Perry and Family,
I am so sorry to hear about your loss. My thoughts and prayers are with you and your family.
Berta Roseberry
Berta Roseberry
December 16, 2011
I am so sorry for the loss of your beautiful daughter.My thoughts and prayers are with you at this time. Angela Licon
Angela Licon
December 16, 2011
We light a candle in sweet remberance of your little Grace Katherine.....
Mary Turner
December 16, 2011
So sorry for your loss, my prayers are with you through this trying time. Although I did not know Gracie or her family, I do understand your grief and loss. My daughter who also had PWS passed away Oct 26th from a stroke in her sleep. She is now my angel in Heaven. She will look after Gracie.....XOXO
Susan Barrows
December 16, 2011
so sorry for the loss of your beautiful daughter gracie! my thoughts and prayers are with you all.
Bobbie Jo & Graisen (4 PWS)
December 16, 2011
I will always remember you Gracie Kat. Xoxo love you always.
Mandy Gelms
December 16, 2011
I am sorry for your loss. My sympathies are with you. I wish I had more words. Donna Garber
Donna Garber
December 15, 2011
Dearest ones, I a sending you so much love and I hope you feel it as if you are wrapped in a warm blanket. I am soo sorry that she left you so unexpectedly. I love all of you dearly, Anthea
Anthea Gappmayer
December 15, 2011
GRACE was very special to me, I am there for you Webster family!
December 15, 2011
I would like to extend my sincere sympathies to your family. No one should have to bear the heartache of losing a child.
Janis Tull Williams and Audrianna (PWS)
Janis Williams
December 15, 2011
Perry, Erica and family, I was glad that I got the opportunity to meet your lil girl Grace. Every time you would post updates on her progress or post pictures or talk about the research being done it was very inspirational to see just what an amazing lil girl she was. She was very blessed to be surround by so much love and have such a wonderful family such as yours. I know there will always be a whole in heart but remember you will always have an angle on your shoulder. May God Bless you and help you through your time of grievance. Our prayers and thoughts are with u all.
Pam silkwood
December 15, 2011
may God continue to hold you close in your time of grieving. Though we did not know Grace personally, we know that she will be missed by many.
Sarah and Carl Garrett parents to Corbin 5 yrs old PWS
December 15, 2011
love on your heart, love on your head, love on your soul. may you find peace. our deepest condolences, The Smith Family of Atlanta, Georgia...Anthea's friends
tracey miller-smith
December 15, 2011
So sorry for the loss of your little girl Grace.
Chris Dolan
December 15, 2011
Grace was a huge bundle of sweetness and joy.
Ariel Sewart
December 15, 2011
you dont know us but we deal with PWS everyday too...May God give you the strenght to carry on in Gracie's Memory
Bobbi and Matthew (pws/upd)
Matthew and Bobbi Surgenor
December 15, 2011
To the Family of Grace..You don't me & I did not know Grace. However after reading her guest book, I got the sense of what a special young girl she was to her family & friends. I pray your many memories will bring you peace and comfort in the days ahead. Sending God's richest blessing to Grace's entire family.
December 15, 2011
We are praying for your family. Grace was such a wonderful little girl and I always enjoyed her visits at work. She is among the angels.
Kristen Reagan
December 15, 2011
Erica and Perry and Grace's precious brother and sister - May the peace of God, which transcends all understanding guard your hearts and your minds. Our thoughts and prayers are with you thinking of Grace.
Bonnie Martin
December 15, 2011
December 15, 2011
I'm so terribly sorry for your loss. My prayers are with your entire family. We also have a child with pws. I pray for your strength and peace in such a time of sorrow. From our family to yours. Sending you all our love hugs and prayers.
Jennifer Cabell
December 15, 2011
Our sincerest sympathies to Perry and Erica, Sarah and Garrett, and Grace's extended family. Grace was and will continue to be the greatest inspiration to us with her journey through unrelenting medical hardship in her short life. She is now at peace and an angel overlooking all of us.
Marjorie and Ted Busby
December 15, 2011
You don't know me, but know that my heart is breaking for you...GOD BLESS you and you're family...
Marcella Lasley
December 15, 2011
Although I never met Grace in person, my memory of her will forever be the image Erica shared with Hope for HH of the most beautiful little girl in sunglasses holding a flower with a smile full of hope and grace. Our prayers and thoughts are with you all - we are so sorry for your loss.
Ilene & Craig Miller
December 15, 2011
Erica and Perry - We are praying that you can find peace in these dark days. Grace was an amazing child and her light will shine in our hearts forever. She blessed so many others with her courage and spirit, and she has pioneered change that will help so many other kids that walk in her footsteps. Thank you for letting us be a part of her beautiful life.
Lisa Soeby
December 15, 2011
Praying for all of you at this most difficult time. May the memories you have of your sweet sweet girl provide you peace and comfort in the days ahead.
December 15, 2011
Our thoughts and prayers are with your family. Simon still remembers his "girl friend" Gracie from preschool. Gracie had such a big heart and joyous personality. She will be missed
Courtnay Fork
December 15, 2011
Dear Erica and family.

Sweet Grace will never suffer again and she is getting her great reward. I know you will miss her, but she will always be with you in your heart and memories. The Newman family wants you to know that she was special to us too since she shared so much with Ian. Our prayers are with you.
connie newman
December 15, 2011
Perry & Erica...I am so very sorry for your loss and my thoughts and prayers are with you and all of your family...
Cathe Bledsoe
December 15, 2011
We are so very sorry for your loss, Webster family. Grace touched so many lives and her absence will be felt by many. Sending up prayers for peace in your name.
Traci Reed
December 15, 2011
may God bless your family and keep the joy and love in your hearts brought to you by your little angel
Holly Langston
December 15, 2011
I am so sorry for your family's loss. Grace was such a sweet girl and a good friend to Dane in preschool. He still talks about how much fun they had digging for treasure. We will remember her beautiful smile.
Kristi Richey
December 15, 2011
Lara and I will keep you all in our thoughts. Hugs to you.
Brian and Lara
Brian Smithson
December 15, 2011
My thoughts go out to the family and friends that were blessed to know such a courageous little girl! Perry & Erica, may your loving memories of her give you peace and help you keep her close to your heart. Lots of love to you & your family during this time!
Janette Stevenson
December 15, 2011
Erica, my thoughts and prayers are with you and your family. May Grace always be alive in your hearts and remembered for the joy and happiness she has given you.
Egle Liutkus
December 15, 2011
i am so sorry this happened but we will keep Grace in our prayers. with all our love aunt bev and uncle bob
December 15, 2011
Erica and Family, I am so very sorry for your loss. I pray that God will heal your hearts and give you visions of Grace dancing in Heaven! I will be praying for you.
Keela Fox
December 15, 2011
Please know that my heart and prayers are with you. Grace gave some much to all who were fortunate to know her. She will remain in our hearts forever.
Trish Gilmer
Invite others to add memories
Share to let others add their own memories and condolences