This is for the parents of Ethan. I have never met him, nor did I know him but I have to tell you my story and how Ethan has made a monumental difference in my life. I am 58 and live in Gilbert. I have been diagnosed with a very rare brain disease called Cadasil. Only 1004 people in the world have it. I was devasted for my kids more than for myself but found I would take to my bed much more than was needed. Then I came upon Ethan's story. You son is responsible for me getting out of bed and for helping me cope with my rare disease. I cannot fathom how a boy (the same age as my son) has LITERALLY changed MY life. If I am lucky or by the grace of God I last five more years, I owe it to Ethan. I will never forget how his courage and acceptance has improved my life greatly. I hope to meet him in heaven and relate to him just what he did for a total stranger. God is great and so was Ethan from all the messages I have read. Thank you for creating this beautiful human being.
With my condolences,
Debra L. Driscoll ([email protected]