Nash Declan McDonald
October 17, 2015 - September 19, 2021
Charlotte, North Carolina - It is with the heaviest heart that we share the passing of our precious son, Nash Declan McDonald, on September 19, 2021.
We welcomed Nash into the world October 17, 2015, a day that forever changed the trajectory of our lives. Meeting eyes with Nash that day was like watching our hearts beat outside of our bodies. We knew from our first glance that Nash carried a unique and powerful brightness.
Our little blonde-haired boy grew so beautifully into a Tennessee-football-loving, scooter obsessed, soccer all-star who cared deeply for his family and friends. Nash had a way about him that made others flock to him as he touched them with his charming, kind and gentle soul. Nash was full of questions, full of wonder, and brought smiles to everyone he encountered. Nash enveloped everyone with his kindness. He was the kind of kid who worried about where the bugs would sleep at night and if Santa would wait so he could hug him in the morning.
On February 27, 2021, our lives took an unexpected turn as Nash was diagnosed with X-linked Adrenoleukodystrophy (X-ALD), a progressive and terminal brain disease. Over the last six months, we painfully watched as our Nash slipped away - losing his sight, hearing, ability to stand, walk, talk, eat and drink. What remains today is the path of love that he paved. Through the teary eyes and the warm embraces, our hearts are full knowing that so many were touched by Nash and his story.
When we close our eyes, we can still see our most handsome little guy. We can hear his laugh and feel his warmth – his light will live on in us forever. We will make Nash proud for the rest of our days and will be sure that his little sister, Baylor, always remembers her very special big brother.
Nash is survived by his loving parents, Matt and Sarah; his sister, Baylor; his guard dog, Neely; grandparents, Don and Denise Penney and Mary McDonald; his aunts, Marlena Oden and Leah Rollison; his uncle, Ryan Oden; and his cousins, Gradyn Rollison, Wyatt Rollison, and Julian Oden. He was preceded in death by his grandfather, Dan McDonald.
The family will receive visitors Thursday, September 23 from 6:00-8:00 pm at Lake Pointe Hall at Colonel Francis Beatty Park. A service will follow Friday, September 24 at 10:30 am at Hope Community Church at 4418 Rea Rd. The family encourages everyone in attendance to wear their favorite shade of blue. Masks will be required at the visitation and service.
In lieu of flowers, contributions can be made to Nash's Ray of Light GoFundMe or to X-Out ALD in honor of Nash McDonald.
Condolences may be offered at www.McEwenMyersPark.com
Published by Charlotte Observer on Sep. 22, 2021.