Tiffany Samantha Linker
TIFFANY LINKER Tiffany Samantha Linker "TUFF TIFF" of Monroe, NC, died after a life-long struggle with Fibrodysplasia Osscificans Progressiva, a rare, debilitating bone disease. She was born May 2, 1989 in Charlotte, NC. Her parents are Mark and the late Annamarie Linker; grandparents Joe and Joanne Mucci and Bettie and the late Jack Linker. Tiffany was a member of Benton Heights Presbyterian Church in Monroe, NC and had a strong faith in God. She had a great love for life and was loved by everyone who came in contact with her. People from all over the world knew Tiffany and were touched by her faith, strength, wit and bright smile. The family moved to Souderton, to be close to the University of Pennsylvania Hospital and Dr. Fred Kaplan and staff who are researchers for FOP. Early on Tiff was the spokesperson for FOP in documentaries on TV. Dr. Kaplan was so dear to Tiff and the family that she called him Uncle Fred and they considered him family. Also, there she began a life-long friendship with Julie and Alana Mokrzycki. About 4 years ago, they moved back to Monroe to be close to family. Tiff was artistic and creative being able to paint, draw, sew and sing. Tiff loved to sew but FOP restricted her so she could not use a machine. Undaunted, she skilfully made her school costumes, prom dress and other clothes by meticulously stitching them by hand. She had a beautiful voice, often singing at the Christmas Eve service at Faith Baptist in Sellersville. Being an avid reader contributed to her extensive knowledge on many subjects. Throughout her life, she adapted instantly to every stage of her disease. When her elbow locked up and she was not able to feed herself, she asked for several tongue depressors, a plastic fork, spoon and tape. She taped them together putting the fork on one end and spoon on the other. With her wrist action, she could feed herself. Always mindful that some people were uncomfortable and did not know what to say to her, she would break the ice with her sense of humor by saying that they were standing on her oxygen line and she could not breathe. This would bring a horrified reaction, but then she would break out with that winning smile and say she was just kidding. Many times throughout her life Tiffany was told that she would die in just a short while only to bounce back baffling the doctors and nurses. Finally, it was God's will to take her home to be with Him and she is in pain no more. The family will receive friends Monday, July 30, at McEwen Funeral Home of Monroe from 6 to 8PM. A memorial service will be held on Tuesday, July 31, at Benton Heights Presbyterian Church at 2PM. Memorials may be made to Hospice and Palliative Care Charlotte Region, 1420 E. 7th St., Charlotte.

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Published by The Reporter from Jul. 29 to Jul. 30, 2012.
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19 Entries
I know it is very late, but it is never too late to remember a friend you can remember watching VeggieTales with, Madem Blueberry was the first EVER for me! A girl who taught you lessons you would never realize until today. Her passion and love ran deeper, probably than that of God almighty himself. I may have had friends growing up, but I knew I had one and only one real friend. I can still remember the smell of her home and the taste of her mom's delicious slow cooker stew and her pie.
Nobody could have ever asked for a more perfect friend and God couldn't have created a more perfect angel. Thank you Tiffany and family! Thank you!
Brian Hughes
Friend
March 30, 2019
I met Tiffany in 1999 while reporting on FOP. She was stunning. I remember hoping that she would be able to brush that long beautiful hair as long as possible.
My condolences on your loss.
Elizabeth Kiem
June 4, 2013
So sorry to hear about Tiffany! I was just informed by a friend! Also, I had no idea about Annamaries' passing. When did this happen and why? I will be praying for you.
Joanne Leber
January 8, 2013
Mark we are soooo very sorry for your loss....Tiffany was very precious, fun to talk to and just a great person to be with....so sad for her and Annamarie's passing...We will be praying for you...Jenn and Tom Rissmiller
Jennifer Rissmiller
January 8, 2013
Mark, I was so sad to hear about the loss of Tiffany and stunned to hear that AnnaMarie was gone too. Can't imagine what you're going thru. You two are one of the bravest young couples I've ever known, and I know that you both sacrificed so much to give Tiffany a good life. Please know that you all are in our prayers.
Jack Rhyne
August 5, 2012
Miss Tiff was a very special soul. I only wish I had known her better. God bless my sister Bettie and nephew Mark.
Debra Lehr
July 31, 2012
Tiffany "Tough Tiff" certainly was just that... "Tuff" she was loved by all who crossed her path. I'm thankful to have met her and her parents at past FOP Symposiums. She will be forever missed. My deepest condolences go to her Father Mark and the rest of her exttended family. Her demise has really hit us hard, gone too soon!!! Tiffany now has joined the rest of the many other FOP angels...
Robin Rice
July 30, 2012
I am so sorry for your loss! I remember Tiffany when she was little at a symposium in Philly! My parents and I send our heartfelt condolences! Tiffany is among the angels now and is in no pain! May she rest in peace forever!
Monica AndersonMonicaA
July 30, 2012
Tiffany was a special friend to me and the whole family became special as well. I can rejoice knowing she is with loved ones, God and Jesus, what more can anyone want?
Kevin Cousins
July 30, 2012
I remember Tiffany from being in my son's class in the Souderton School District. I am so sorry for your loss. Tiffany was an amazing young lady!
God Bless you!
Lynne Sobel
July 30, 2012
Condolences from the German FOP-Group
Roger Zum Felde
July 30, 2012
The IFOPA extends its deepest sympathy to the Linker family with Tiffany's passing. May you find God's peace during this time of loss.
Mark Gambaiana
July 30, 2012
Mark ... so sad to hear of your loss of Tiffany. You've had your share of 'stuff' lately. Just know I have you in my thoughts and prayers. David Bayer, Hospice video volunteer
David Bayer
July 30, 2012
Mark and family, You are in our thoughts and prayers. Tiff was a wonderful person and we were blessed to know her.
The Cooper Family
July 30, 2012
My thoughts and prayers go out to all of the family during this time. I was honored to know "Tuff Tiff" and she was such an inspiration!
Julie Shelton
July 30, 2012
Mark; and family...though it's been years since we knew each other in high school; I am so saddened to hear of this tremendous loss. Please know that you're all in my thoughts and prayers.
Lional Cureton
July 29, 2012
Mark, I am thinking of you today, I am so sorry to hear about Tiffany. I worked with AnnaMarie at Wal-Mart. I was so sorry to hear about AnnaMarie, and now Tiffany. My thoughts are with you.
Kim Sassenberg
July 29, 2012
God bless you all during this time. What a beautiful obituary of who sounds like she was an awesome young lady who is now in the hands of the Lord.
July 29, 2012
I am thinking of you today.......and send my love and prayers...
July 29, 2012
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