Jordan Reed Feltus

My deepest sympathy to all those who knew and loved this wonderful young man. I learned of his passing through the EDNF web site. I didn't have the privilege to know Jordan, but I hope to meet him at a future time, when God "will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore." Please find comfort in the hope to see your beloved Jordan again one day, through the love and grace of God.

Dear Feltus family members,
How sad I felt when I read about the passing of your son and brother, Jordan. How happy I felt though when I read about the life he led full of adventure, challenges and love. As a mother of a daughter with Hypermobile EDS, I can appreciate his living every day to the fullest. There are so many things we all could learn from Jordan's approach to life. Please know as a mother and as someone who works to help those with EDS, I would give anything to bring...

Barbara and family:
I was saddened to read of Jordan's death. Please accept my deepest sympathy. I had the priviledge of meeting Jordan at an EDS conference. May you receive the strength you all need to get throught the difficult days ahead.

You do not know me but we are connected as we are both mothers to someone with EDS. My daughter once said to me that even with the hardships of having EDS she was glad that she was on this earth and grateful for her life. It is very obvious that your son felt the same way. He will be another reason we work for research in EDS. Marie

Dear Mrs. Feltus,
I never thought I would be unhappy to see you and so happy to see you at the same time.
Jordan was amazing, and he still is amazing because I see him everywhere in everything that is good and kind.
Thank you, for bringing him into this world, he made it so much brighter.
All my love,
Mary Chris

My thoughts and prayers go out to the family and friends of Jordan. It sounds like he was a remarkable young man and will definitely be missed. I am so glad to see that he was able to accomplish all that he did during his lifetime, and I know that those that know him are very proud.
I am all to familiar with Ehlers-Danlos and how it can affect a life.

Dear Barbara and Family,

It is so difficult to find the words to comfort a family who has had such a great loss. My heartfelt sympathy goes out to you for the loss of your beautiful son.

The way that Jordan lived his life was a true inspiration to all of us who live with VEDS.

Please know that I will keep Jordan in my heart and remember him with every presentation our group gives to raise awareness of EDS. Perhaps one day our efforts will make a...

Dear Feltus Family,
Please know that we are holding you in our thoughts and prayers. You son is an inspiration to the rest of us who live with EDS. My 14-year-old son was recently diagnosed and has been severely depressed since. It is good to hear that others with EDS can live a full life.

Our deepest sympathy to you and your family. I write this to you because i and some in our family suffer from EDS as well and know the difficulty and disruption this syndrome causes. Your son was a bright shining star and we are all blessed to have him even for the shortest time. God Bless you all.
Lori